MenieresInfo.com Blog

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Saturday, February 25, 2006, 5:13 pm

How Does One Perform One’s Job With Meniere’s Disease?

A reader asks:

My neurologist diagnosed me with “probable” Meniere’s Disease three years ago based upon a severe attack of ataxia that lasted for three weeks.  At that time, MRI scans were taken with and without contrast and no lesion was seen.  Recently, I have just fallen — twice — for no apparent reason.  I broke my ankle the second time.  My question is, how does one work with Meniere’s Disease?  I plan to go back to work soon.  I have not spoken with my neurologist about this.

Ataxia is defined as the inability to coordinate muscle movements.  Read about the diagnosis of Meniere’s Disease at the MenieresInfo.com Diagnosis Page.  As you can see there, a diagnosis of Meniere’s Disease involves a “differential diagnosis,” and diagnostic tests.  Most doctors use the AAO-HNS criteria to define Meniere’s Disease, and what you have described that happened three years ago and what you have described that happened recently do not fit that criteria.  Furthermore, we are puzzled as to what a diagnosis of “probable” Meniere’s Disease might mean.

It’s not clear to us that your recent falls are due to the same condition that brought on your ataxia three years ago.

Obviously (to us, at least), you need to get diagnosed by someone — either your neurologist or some other doctor.  We always recommend multiple medical opinions, both for diagnosis and for treatment options.

If you have Meniere’s Disease, the way that you work, in simple terms, is to (1) get treatment for the Meniere’s Disease and (2) if you become disabled, request reasonable accommodations for the disability.

See the MenieresInfo.com Treatment Page and the MenieresInfo.com Disability Page.

Tuesday, February 14, 2006, 5:51 pm

I am a Graduate Student Plagued by Fatigue and I Don’t Know What to Do

A reader asks:

I am a graduate student with Meniere’s Disease. My problem is that I can’t work as hard as I need to, because I get really tired. The department that I major in at school has been really kind to me, but I still can’t handle my studies well. I just don’t know what to do. I don’t even have confidence that I will ever catch up to my fellow graduate students.  I don’t think I can ask for more accommodations for my Meniere’s Disease from the dean.  What can I do?

About school.  You can ask for the same accommodations as any other severely ill student, such as students with multiple sclerosis (MS), attention deficit hyperactive disorder (ADHD), leukemia, ovarian cancer, and any other serious illness.  However, we know the feeling.  When people are not openly accusing us of shirking, they are wondering whether we are shirking, and one never knows when they will turn on us.  See the MenieresInfo.com Start Page and Disability Page.

No doubt some of what you are feeling is anxiety that the stress and fatigue will bring on an attack of vertigo.  Anxiety is not a symptom of Meniere’s Disease but, for many patients, it is a consequence of the symptoms of Meniere’s Disease.  If the fear of vertigo is greater than the likelihood of vertigo, there are anti-anxiety drugs to consider, although they are not without side effects that must be weighed.  Talk to your doctor.  Of course, if you fear vertigo, your fear may be well-grounded because of frequent vertigo attacks, and that is a different situation.

Depression is a common consequence of the symptoms of Meniere’s Disease.  Depression can manifest as fatigue.  This is something else to discuss with your doctor.

Talk to your doctor and get multiple medical opinions about diagnosis and treatment options.  We are fans of multiple medical opinions.  No doubt there are possible treatments that you have yet to explore.  Any one treatment may or may not help you in particular, but it’s worth exploring them to see which treatment works best for you.

The truth of the matter is that Meniere’s Disease can be so severe for some patients in your circumstance that a short term or long term withdrawal from school might become necessary.  However, we hope that for you that does not become necessary.

Wednesday, February 8, 2006, 12:57 pm

Discrimination at Work — How Does One Deal With This?

Originally posted February 4, 2006.
Slightly revised February 5, 2006.
A reader’s comment added February 8, 2006.

A reader asks:

The people in my job are really mean towards me and this makes me get sicker. They have some type of vendetta towards me that I do not understand. The harrassment is so massive it’s unbelievable. I work in a government office that, believe it or not, is supposed to guard against discrimination (in housing). How do I deal with this work situation?

This is a disability question, and there is a good deal of disability information at the Disabililty Page at MenieresInfo.com. Employment-related disability questions are essentially legal questions, and there is information at that page on disability lawyers. Initial consulations with lawyers are often available at low-cost or no-cost (ask the fee when you call for an appointment). If there is a fee for the initial consultation, it will no doubt be well worth it. (Note on that page that fees for legal representation before the Social Security Administration (SSA) are a separate issue and are regulated by SSA.)

There are few things worse in life than a job that one hates to go to every day and that one dreads all weekend going to on Monday. This has a downer effect on everything else in one’s life.

People with disabilities in general are often seen as slackers who use their disability as an excuse to shirk work. Sometimes the reality is that these same disabled people carry the load of others in addition to their own work and get no credit for it. Everything they cannot do seems magnified out of proportion. Everything good that they do seems to go unnoticed.

This is ten times worse with “invisible disabilities” — when the disability is not obvious to the naked eye. A coworker in a wheel chair is seen as more sympathetic than a coworker who “looks normal” but isn’t. Examples include disabled employees with ADHD (attention deficit hyperactivity disorder), CFS (cronic fatigue syndrome), and, of course, Meniere’s Disease. When we are sick, we are accused of “faking it.” The fluctuating nature of the condition doesn’t help the visual perception — sometimes we are OK; sometimes we are not. People will say “every time thus-and-such some up, so-and-so (us) gets sick; how convenient.” They see connections where there are no connections. We can end up being outcasts, somewhat like in high school only much worse.

Of coure, there are laws against discrimination in the U.S. workplace, notably (but not exclusively) the ADA (Americans With Disabilities Act). See the Disability Page at MenieresInfo.com. Unfortunately, laws don’t actually stop discrimination, and people break these laws every day.

It seems to us (and we claim NO expertise) that there are three possibilities: (1) pursue remedies for discrimination, (2) get another job in the same agency, or (3) find a job in another agency.

In an enlightened and competent bureaucracy, once you file a complaint of discrimination, you may be fortunate and get all the relief to which you are entitled. A complaint properly acted upon might even get you reassigned to another work unit with a different supervisor, and with different duties, and with accommodations for your disability. Unfortunately, in an unenlightened or incompetent bureaucracy, you may be become even more ostracized than before, and your performance evaluations may suddenly take a nose-dive in retaliation. Retaliation is illegal but still possible, perhaps even likely. It’s a crap shoot.

The simpler solution is to find another job or at least another supervisor on your own. Even “normies” have to duck and dodge sometimes to get out from under the thumb of a supervisor or coworkers who have ostracized or oppressed them. For a variety of reasons, that may not be possible. In a government job, one is typically so committed to the pension and other benefits, and one’s job expertise is typically so narrow, that one’s reassignment opportunities are limited. Worse, one receives an unfairly poor evaluation due to the unfair perceptions attached to one’s Meniere’s Disease that makes it difficult to compete successfully for another job. Nonetheless, that is the simpler, more practical, solution. It pains us to say so, because you shouldn’t have to be discriminated against in the first place and, when you are, you should be able to get the discrimination stopped. The right thing should prevail. Sadly, it oftentimes does not.

Oddly, those of us who are blessed with wonderful supervisors and wonderful coworkers and supportive home situations won’t understand this at all. Sad but true, sometimes you just gotta be there.

After all of this blather, you by now have deduced that we just don’t know what in blazes to tell you — but we sure do understand the situation. It’s tough.

We’d be delighted to receive well thought-out comments from readers to add to this issue.

Added February 8, 2006

A reader provides comment:

Since this person is a government worker, chances are the worker belongs to a union.  Harassment, as well as worker disability, are union issues and this person should contact a union representative for assistance and representation in this matter.

This astute reader adds the issue of workplace harassment contrary to a union contract to the issue of employment discrimination based upon actual or perceived disability, and notes the possible, perhaps probable, availability of union representation in either case.  We are grateful for the comment.

Many U.S. government employees are in a “collective bargaining unit” which is usually represented by a union.  The ability of the union to deal with any issue depends on the wording of the “collective bargaining agreement” (the “union contract”) and the resources of the local chapter of the union that represents the bargaining unit.  The alternative as to the discrimination issue might be a counselor in the agency’s equal employment opportunity (EEO) office (the Equal Employment Opportunity Commission may not have initial jurisdiction in a U.S. agency matter, but it’s worth looking into).  While the agency EEO office is supposedly independent, in fact it is usually part of the same management that is at fault either directly or by failing to take positive corrective action.  As to the discrimination issue, the employee may be faced with a choice in the very beginning of going “the union route” or ”the EEO route.”  If so, the union representative (usually a “steward”) can provide counsel on making the choice.  Whether a claim of harassment could be represented by the union in addition to a separate claim of discrimination brought before the agency EEO office is something to consider.

Despite the existence of anti-discrimination laws (and, possibly, anti-discrimination provisions in union contracts), workplace discrimination remains a disturbingly frequent occurrence in the workplace.  The remedy should be easy, and sometimes it is, but too often the employee faces an uphill battle.

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