MenieresInfo.com Blog

Patient Hank Akins struggles with Medi-Cal (which is what Medicaid is called in California) to get a diagnosis.  But he finds that he is an “inconvenient patient,” rather than a valued member of our society.

 Link:  An Inconvenient Patient

Received in the email:

Greetings to Everyone at menieresinfo.com! 

We have some great news to share on recent developments with Randy Thurman’s art and music careers.  The year has been very successful with both.  On the art scene, Randy’s work has been exhibited in a total of eleven international group shows, with publication of his visual art and written work in two global publications.  On the music scene, Randy has been honored as MUSO’s “Musician of the Month” in the UK.  For the full story chronicalling Randy’s life long musical journey we invite you to visit the following link http://philbrodieband.com/muso-of-the-month.htm   (After January that article will be archived at http://philbrodieband.com/muso_randy_thurman.htm ) 

Randy’s affliction with Morbus Meniere’s has been a inseparable facet of his music and art and day to day life.  As his wife, I can say that I am incredibly proud of Randy, for his courage and perseverence, as well as for the tremendous accomplishements he has made as an artist, writer, and musician.

If you need to use the following links pertaining to the exhibitions and publications, please feel free to!

United Creators 2007 ”Vanguard” Print Catalogue

http://www.unitedcreators.com/eventdetail.php?id=25 

The Perfect 8, Issue II ”Resonance”

http://www.perfecteight.com/Perfect8_2/articles/conspiration.html

Barebrush.com “dedicated to the art of the n*de”

http://www.barebrush.com/Featured/RandyThurman.html

Monkdogz Urban Art - currently represeting Randy Thurman

http://www.monkdogz.com/chelseagallery/artistart/Thurman/artist_thurman.htm

Thanks so much for all that you do!

Christy Thurman

Click here to read a a GREAT message from GREAT Meniere’s Disease patient Annie Coleman at her website anniecoleman.com.

Here are just some of the many important things to be found in her message, things that make her a GREAT patient:

• She became informed!
• She changed doctors when it made sense.
• She went to a neurotologist (specialty most specific to Meniere’s Disease).
• She approached treatment logically, starting with the least invasive.
• She is aware that improvement following treatment may mean that the treatment is responsible, but considers the possibility of coincidental temporary remission.
• She knows that when one treatment doesn’t improve symptoms, the next treatment may, and that one never knows which treatment may be the charm until one tries it.
• She has determination — she continues to explore ways to improve her symptoms.  She reacts to disappointment not with despair but with progression in treatment options.
• She continues with her life, yet adapting to the demands of her symptoms.  She did the things that she could and adapted to the things that she couldn’t do.
• She is a realist and she is an optimist, proving that these two views can coexist.

We are grateful to Annie for posting this GREAT message, and we wish her well.