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Resources to Help You Find a Doctor
Copyright © 1997-2010 Meniere's
Disease Information Center. All rights are reserved.
All copying, including (but not limited to) websites, bulletin boards,
forums, and blogs, is prohibited.
Click here for more copyright
information.
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We don't endorse,
recommend, or refer to physicians for the
simple reason that we have no particular competence to do so. |
Table of Contents
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Introduction: Keep Searching for the Doctor
Who is Best for You
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There is no one "best doctor."
There is only the best doctor for you.
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Meniere's Disease is difficult to
diagnose and can be difficult to treat.
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You will need a doctor who is
technically knowledgeable about Meniere's Disease, who experienced in
treating Meniere's Disease, who actually listens to you, who actually
explains your options to you and why, and in whom you have trust and
confidence.
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You will need to be a full partner
with your doctor in your medical management.
Section 1: Medical Specialists Explained
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Meniere's Disease is a disorder of
the inner ear and the vestibulocochlear (8th cranial) nerve.
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An ENT (ears, nose, and throat
doctor) (otolaryngologist or otorhinolaryngologist) specializes in
disorders of the ear, nose, and throat.
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An otologist specializes in
disorders of the ear.
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A neurologist specializes in
disorders of the nerves.
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A neurotologist (also known as
otoneurologist) specializes in disorders of the ear and of the
vestibulocochlear
(8th cranial) nerve.
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Neurotologist board certification.
In the U.S., there are "boards" that certify physician specialists.
The umbrella organization for all 24 boards that certify physician
specialities is the American Board of
Medical Specialties (ABMS). One of those boards is the
American Board of Otolaryngology (ABOto).
That board certifies otolaryngologists (also known as
otorhinolaryngologists). It also certifies the subspecialty of
neurotology. There is a FAQ (frequently asked questions) page at
the OBOto website here.
A booklet at the ABOto website, in .pdf format, provides information
on the qualifications for a board-certified neurotologist as well as
the board's definition of a board-certified neurotologist. Click
here.
Section 2: A strategy for finding a doctor
out of town, even out of state.
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Think of finding a
physician in two steps: (1) Find a physician to diagnose you and
develop a treatment plan. (2) Find a physician to treat you.
Obviously, the physician that first diagnoses you and develops a
treatment plan could be the same physician that treats you, but NOT
necessarily.
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Step 1: Diagnosis and
Treatment Plan. Meniere's Disease is
very difficult to diagnose. A proper diagnosis requires a lot of
expensive equipment that most otolaryngologists and neurotologists
just don't have. Here's an option for you to consider. Even if you
live in the boonies, you may travel to a place where you can be
properly be diagnosed and receive a treatment plan. You don't
necessarily have to be treated there. You can make the trip for
diagnosis and treatment plan this year's "vacation" -- a vacation
strictly for medical purposes. If you try to combine your medical
needs with touristing, make sure your medical needs come first.
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Try for a Monday
appointment so that you have a day or two or three to take the tests
and get the physician's opinion and treatment recommendations (and
-- perhaps -- treatment). When you call for an appointment, tell
the appointment managers what you have in mind so that they can help
you. Be sure to bring with you copies of any test results that you
already have that you can contribute to your medical file with that
particular physician.
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Step 2:
Treatment. After you receive your
diagnosis, and if it is Meniere's Disease, and after you get that
physician's opinion as to a treatment plan, the choice is yours.
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You may opt for treatment
right then and there with that physician, perhaps even surgery (transtympanic
instillation and perfusion of certain drugs; endolymphatic shunt
surgery, etc., which are usually outpatient surgeries). If you want to
continue to travel to that physician for treatment, fine.
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You may opt for treatment
close to home, coordinated through your family doctor or local
specialist. Or you might ask your diagnosing physician for a
recommendation as to a physician who might treat you back home using
the treatment plan of the diagnosing physician.
Section 3: Getting Multiple Medical Opinions
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Most people are more careful about
buying a computer than they are about their own medical diagnosis and
treatment.
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If you were buying a computer, you
might go to several places and ask for opinions of sales associates.
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We always recommend getting multiple
opinions, both for diagnosis, and for treatment. Medicine is an
art, not a science. Meniere's Disease is tricky to diagnose and
to treat. We suspect that there are many false positive
diagnoses of Meniere's Disease (meaning that it is not Meniere's
Disease after all) and many false negative diagnoses that are not
Meniere's Disease (meaning that a diagnosis of something else is
really Meniere's Disease).
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You cannot go wrong by getting 2nd/
3rd/ 4th/ and even more opinions both as to the medical diagnosis and
as to the treatment options, even when doctors agree on the diagnosis.
You are likely to get different answers. Your duty to yourself
is to ask questions. "Why do you recommend that treatment over
any other treatment?" "What other treatments are there?"
"Are you 100% certain of this diagnosis?" "What other
possibilities are there?"
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Ultimately, you are in charge of your
own treatment. Pick and choose the diagnosis and the treatment
plan that makes sense to you. You have to work at this. Do
your research.
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Resources:
The life that you improve may be
your own.
Section 4: PubMed as a Resource to Find a
Doctor
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PubMed is a resource of the U.S. National Institutes of Health
(NIH), National Library of Medicine (NLM). It contains literally
millions of abstracts of medical journal articles.
- You might use
PubMed to find a physician who
has written a published article about Meniere's Disease or on some
particular aspect of Meniere's Disease.
- You might also use
PubMed to find a physician who
has written on Meniere's Disease and who practices in your community.
- For example, if you are looking for a
doctor who is in Montreal, you might search PubMed for "meniere's AND
montreal." (The "AND" must be in all caps to be recognized as a
connector.) (Like
this.)
- Try different searches. A search
for "meniere's AND alabama" will miss some articles that will be found
by searching for "meniere's AND birmingham."
Section 5: Patient Advocacy Groups as
Resources to Find a Doctor
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USA
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UK
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Australia
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Elsewhere
Section 6: Professional Medical Societies as
Resources to Find a Doctor
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American
Board of Otolaryngology (ABOto). In the U.S., there are "boards" that certify physician
specialists. The umbrella organization for all 24 boards that
certify physician specialities is the
American Board of Medical Specialties (ABMS). One of those
boards is the American Board of
Otolaryngology (ABOto). That board certifies
otolaryngologists (also known as otorhinolaryngologists). It
also certifies the subspecialty of neurotology. There is a FAQ
(frequently asked questions) page at the OBOto website
here. A booklet at the
ABOto website, in .pdf format, provides information on the
qualifications for a board-certified neurotologist as well as the
board's definition of a board-certified neurotologist. Click
here.
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AAO-HNS (American Academy of Otolaryngology-Head and Neck
Surgery).
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The Academy can provide
members of the public with the names of member otolaryngologists in
their local geographic areas. The Academy does not, however, have
lists of otolaryngologists who specialize in the treatment of
Meniere's disease, nor does it recommend any particular physician.
Here is its
otolaryngologist search page.
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The
Prosper
Meniere Society.
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Canadian Society of Otolaryngology --
Head and Neck Surgery.
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The Society has a
find a doctor page;
doctors are listed in Canada, Hong Kong, Japan, Kuwait, Norway, and
the U.S.
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Australian Society of
Otolaryngology -- Head and Neck Surgery.
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New Zealand Society of Otolaryngology
-- Head and Neck Surgery.
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The Politzer Society.
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American
Otological Society.
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American
Neurotology Society.
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European Academy of Otology and Neuro-Otology (EAONO)
Section 7: Medical Schools as Resources to
Find a Doctor
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Treatment. Most medical
schools are affiliated with facilities that treat patients.
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Referrals. Contact the
department of neurotology, otology, otolaryngology, or
otorhinolaryngology, and ask for a referral to a doctor who is a
specialist in Meniere's Disease.
Section 8: Hospital Physical Referral
Services as Resources to Find a Doctor
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Many hospitals operate
referral services whereby you can telephone the referral service and
they will help you to identify a doctor who has the qualifications you
are looking for. Usually the referral service can tell you the
insurance programs with which the doctors are participating.
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Best U.S. Ear, Nose, and Throat Hospitals
-- as reported by U.S. News and World
Report magazine.
Section 9: MedifocusHealth.com's Lists of
American and International "Centers of Research" for Meniere's
Disease.
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Section 10: U.S. Doctors,
Hospitals, and Clinics With Websites (or Other Internet Links) That
Connect Them With the Treatment of Meniere's Disease.
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| We don't endorse,
recommend, or refer to physicians for the simple reason that we have
no particular competence to do so. The following facilities are
listed simply because they have websites (or other Internet links)
that connect them with the treatment of Meniere's Disease.
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| U.S. doctors,
hospitals, and clinics: To be listed, simply provide us with the
Internet link that connects you with the treatment of Meniere's
Disease. There is no charge. Click
here. |
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Arizona
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Arkansas
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California
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Highland:
John Arruda, M.D.
Authorship on Meniere's Disease.
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Irvine:
University of
California, Irvine.
Doctors.
Meniere's Disease page.
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Los Angeles:
House Ear Clinic.
Dr. John House, Dr. Jennifer Derebery.
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Los Angeles:
University of California, Los Angeles.
Drs. Baloh, Demer, and Honrubia.
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Palo Alto and San
Ramon:
California Ear Institute.
Meniere's Disease page.
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San Diego:
University of California, San Diego.
Dr.
Jeffrey P. Harris (author of
the book on
Meniere's Disease),
Dr.
Erik Viire.
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San Diego:
U.S. Naval Medical Center.
Drs. Michael Hoffer and Richard Kopke. (Qualifying patients only.)
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San Jose:
Dr. Jennifer Maw,
Tami C. Runyan,
PA-C. (What is a
PA-C?) Dr. Maw and
Meniere's Disease.
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Colorado
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District of Columbia
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Florida
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Celebration (Orlando):
Florida Ear and Balance Center.
James Atkins, Jr., M.D.
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Jacksonville:
Mayo Clinic.
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Mandarin (Jacksonville):
Dr. Glenn W. Knox.
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Miami:
University of Miami
School of Medicine.
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Sarasota and Venice:
Silverstein Institute/Florida Ear and Sinus Center.
Herbert Silverstein, M.D.,
Jack J. Wazen, M.D., and
Seth I. Rosenberg, M.D. Authorship on Meniere's Disease:
Dr. Silverstein,
Dr. Wazen, and
Dr. Rosenberg.
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Dr. Silverstein
developed the
retrolabyrinthine/retrosigmoid vestibular neurectomy (RRVN)
approach to vestibular nerve surgery and also developed the
Silverstein Micro-Wick (watch the video).
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Dr. Silverstein has
posted an 18-page self-help book for ear problems, titled "Ears 'R' Us
-- Answers to Old Myths," on the Silverstein Institute website.
Information on the book can be found on the home page
here; a direct
download link is
here (.pdf file, 431KB; to read .pdf files, download free Adobe
Reader software
here
(20MB)).
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Tampa:
Tampa Bay Hearing and
Balance Center. Loren J. Bartels, M.D., and Christopher J.
Danner, M.D.
Meniere's Disease Page.
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Georgia
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Illinois
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Iowa
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Indiana
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Kansas
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Maryland
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Massachusetts
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Michigan
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Minnesota
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Missouri
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New Jersey
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New York
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North Carolina
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Ohio
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Oregon
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Pennsylvania
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Tennessee
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Texas
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Virginia
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Washington
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Wisconsin
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Wyoming
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